Myotonic dystrophy type 1 (DM1) is a relatively common hereditary muscle disease. Besides the typical muscle problems, several other organs can be involved. Currently, no curative treatment exists, but we have symptomatic treatment for several complaints. Furthermore, we can be of help for several problems patients and families may suffer. Unfortunately, the disease is rather unknown among the general public. .

Patients, relatives and health care professionals often wonder how to deal with the disease, and whom to ask specific questions. With our website we aim to give more information about myotonic dystrophy, about the symptoms and problems that may arise, and about possible management of symptoms. Furthermore, we will also discuss relevant scientific developments. If you have questions, suggestions or tips, we would be very glad to hear from you.