Myotonic dystrophy (MD) standard of care
The standard of care document gives a basis for qualitative care for patients with myotonic dystrophy (in Dutch).

Multidisciplinary guideline myotonic dystrophy
The multidisciplinary guideline for treatment and management of patients with myotonic dystrophy can be downloaded through the website of the ‘Kwaliteitskoepel”.

Neuromuscular Foundation the Netherlands (ISNO)
ISNO is a national initiative bringing together Dutch neuromuscular specialists and researchers in a network of excellence. ISNO aims to stimulate and facilitate research and to improve treatment of neuromuscular disorders.

Spierziekten Nederland
Spierziekten Nederland (SN) is a patient foundation, founded in 1967, for patients with neuromuscular diseases. SN is involved in optimizing care and effective research. We strive for high quality information, both for patients and health care professionals. Patients with small fibre neuropathy are also welcome at SN.
Through the website ‘Iemand zoals ik’ (Someone like me), you can contact other patients.

Prinses Beatrix Spierfonds
The main aim of the Prinses Beatrix Spierfonds is to fight against all neuromuscular diseases. To reach this goal, medical research is the main tool. We financially support and stimulate research in the field of cure and care for patients with neuromuscular diseases.

Centre for Neurological Learning & Development Disabilities
The Centre for Neurologic Learning & Development Disabilities takes care for diagnostics and initial treatment in children with learning and/or development problems, (probably) caused by an underlying neurological condition.

Foundation for Peripheral Neuropathy
The Foundation for Peripheral Neuropathy is a public foundation committed to fostering collaboration among today’s most gifted neuroscientists and physicians, who are dedicated to neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and one day find a cure for Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunity to dramatically improve the lives of those living with this debilitating disease.

Peripheral Nerve Society
The Peripheral Nerve Society is an international organization of physicians and scientists working together to develop and provide the best treatments for people who have peripheral nerve diseases.
This goal is realized by cooperation – supporting research, training scientists and healthcare professionals, setting standards of care, creating new treatments, and facilitating clinical trials.