Heart problems will develop in many patients, though few people actually have cardiac complaints. The most common type of heart problem in myotonic dystrophy is an abnormal heart rhythm due to a conduction disturbance. When a conduction disturbance is present, signals do not move through the heart in the normal way. This can be very serious, even causing sudden death. However, preventive measures are possible. Therefore, it is imperative that patients have regular cardiac follow-up. The cardiologist will perform an electrocardiograms (EKG or ECG) yearly, and echocardiography and 24-hour electrocardiography (Holter) every 2-3 years.

In case you experience palpitations or (near) collaps, then report this to your treating physician immediately.

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