Myotonic dystrophy (MD) standard of care
The standard of care document gives a basis for qualitative care for patients with myotonic dystrophy (in Dutch).

Multidisciplinary guideline myotonic dystrophy
The multidisciplinary guideline for treatment and management of patients with myotonic dystrophy can be downloaded through the website of the ‘Kwailteitskoepel”.

Neuromuscular Foundation the Netherlands(ISNO)
ISNO is a national initiative bringing together Dutch neuromuscular specialists and researchers in a network of excellence. ISNO aims to stimulate and facilitate research and to improve treatment of neuromuscular disorders.

Spierziekten Nederland
Spierziekten Nederland (SN) is a patient foundation, founded in 1967, for patients with neuromuscular diseases. SN is involved in optimizing care and effective research. We strive for high quality information, both for patients and health care professionals. Patients with small fibre neuropathy are also welcome at SN.
Through the website ‘Iemand zoals ik’ (Someone like me), you can contact other patients.

Prinses Beatrix Spierfonds
The main aim of the Prinses Beatrix Spierfonds is to fight against all neuromuscular diseases. To reach this goal, scientific research is the main tool. We financially support and stimulate research in the field of cure and care for patients with neuromuscular diseases.

Centre for Neurological Learning & Development Disabilities
The centre for Neurologisch Learning & Development Disabilities takes care for diagnostics and initial treatment in children with learning and/or development problems, (probably) caused by an underlying neurological condition.