Proper outcome measures are important, as these enable us to determine for example the effect of a certain treatment. Outcome measures can therefore be considered the fundament for any medical study.
If we cannot measure properly whether a particular treatment has effect, it is possible that we mistakenly conclude that a treatment does not work. This would lead to a situation in which patients would be denied a therapy that in fact is effective. On the other hand, lack of proper outcome measures could lead to the conclusion that a therapy is effective, while in fact it is not. In that case, patients would be treated, with high costs and risk of side effects as a consequence. It is clear that both situations may harm patients.
This is the reason why Maastricht UMC+ puts a lot of energy in developing and improving proper outcome measures for several neuromuscular diseases.